Showing posts with label JDRF. Show all posts
Showing posts with label JDRF. Show all posts

Tuesday, November 18, 2014

Type 1 Diabetes Medical Alert Bracelets Product Review

Type 1 Diabetes Medical Alert Bracelet
Since my 10 year old daughter was diagnosed with type 1 diabetes, we're always on the lookout for products that can make her life easier and safer. The Type 1 Diabetes Medical Alert Bracelet by Living the Dream Goods is a product that can alert a stranger to her disease in case of an emergency. It is made of silicone and is easy to take on and off without help. It also won't discolor your skin. What I loved about it is that it's light weight, easy to travel with, and bright! The words written on it are visible and easy to read. One side reads ALERT Type 1 Diabetes and if your rotate it the other side reads Insulin Dependent.


My 10 year old daughter wore it for a day and found that it caused a lot more attention to her type 1 disease than she wanted. Her friends continuously asked her about it after noticing the bracelet. As such, she has preferred not to wear it unless she is doing an activity that is of greater risk for her safety such as swimming or white water rafting.  She's more likely to experience hypoglycemia (blood sugar low) with these types of activities. 

Overall, we found the Type 1 Diabetes Medical Alert Bracelet to be useful, especially for traveling and vacations. We loved that it's durable, waterproof, and colorful! We've lost a couple expensive medical bracelets on trips. This package includes four, so you have a back-up if you lose one. Highly recommend if planning a vacation where you don't need the extra worry of losing or misplacing a medical alert bracelet.

I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Monday, November 10, 2014

Preparing My 10 Year Old Daughter with Type 1 Diabetes to Manage her Disease Independently

We did it! My 10 year old daughter, Madison, who has type one diabetes went to the movies, the park and out for pizza without anyone educated or trained (just prepped) in her disease for the very first time! And I learned a lot from this experience.

First, I learned that Madison needs to understand that when she eats, it takes about 2 hours before her blood glucose will start to go down. Of course there are exceptions to this rule such as she is running around. Typically when a child with type 1 diabetes eats, their blood glucose will go up and peak about 2 hours later and then start to go down and stabilize.

Yesterday, Madison called me after the movie to let me know that her blood glucose was 323. She had eaten lunch at Noon. Then she ate candy at 1:30 pm with a blood glucose of 256. Her blood glucose still hadn't peaked from lunch. So eating more sugar with a higher blood glucose will make her blood sugar go up higher. The 323 was expected. I told her give it an hour and her blood sugar will start to go down. She felt a lot better after she called me.

Second, I should have educated her friend's dad on who to call for an emergency such as 911 and me! I think it's also important to be aware of the Glucagon pen. It's like an Epipen and used if a person with type one diabetes experiences hypoglycemia and passes out.

The following is how my husband and I are preparing our daughter to become more independent. This is a life threatening disease and it isn't easy for us to let her go out an entire day without us.  For me to feel comfortable, I need to know that she is responsible enough to take care of a disease that has life threatening results if not managed properly.
  • Prepare her medical / diabetes bag. In Madison's bag, we always have the following:
    • Meter including finger pricker and test strips
    • CGM (if she's not wearing it)
    • Two 4 oz juices
    • Container of Ritz peanut butter crackers
    • Wipes to clean her fingers for an accurate testing
    • Glucagon pen (for emergencies)
    • Ketone strips
    • Parents and doctors (endocrinologist) numbers
    • and sometimes Glucose tablets. These don't work as fast for Madison, so we hardly use them.
  • Check her blood glucose using a finger pricker, test strips and meter
  • Administer insulin using a wireless meter, her pump and/or shots. We've just required Madison to know how to administer insulin using her pump because that is all she uses.
  • Understand what to do (and how it feels) if their blood glucose is low (hypoglycemia). Every child is different, but when Madison is low - below 80 - she needs a 4 oz juice and a few peanut butter crackers. 
  • Know what to do (and how it feels) if their blood sugar is too high (hyperglycemia). 
  • Be able to test for ketones using ketone strips.
  • Know that when their blood sugar is too high they shouldn't be eating carbs. They can still eat non-carbs (cheese, meat, celery, cucumbers, pickles). Once their blood sugar goes down to a good number (we like 180), they can have a carb again.
  • Have a phone readily available. We let Madison borrow her brother's phone so she didn't have to keep asking her friend's dad. She texted me a few times and then called three times. It gave her peace of mind that I was there if she needed me. When we spoke, I had her answer her own questions versus me giving her the answers.
I would love to hear other ideas or suggestions for how to continue helping my daughter become more independent!

Sunday, November 09, 2014

Overprotective Mom Did It! My Type 1 Diabetes Girl Is Out At The Movies Without Me

My Girl With Type 1 Diabetes
I'm sitting at my computer nervously waiting for one text or call from Madison (my 10 year old daughter with type 1 diabetes) to let me know she's okay. I finally let her go to the movies and then out for pizza without me or her dad being there. It actually isn't that we need to be there. I always felt better if someone who was trained or well educated in her disease should be with her. Today, she's out without anyone who has been trained, and a dad who has only been briefly prepped on her complex and deadly disease.

Since she was diagnosed (November 4, 2011), my husband and I have attended every birthday party, athletic game, and school event she has been invited to. We have allowed her to go over friends houses without us, but with pretty strict rules to follow such as calling me when she was going to eat so I could confirm her carb count to insulin dosage, since the parent wasn't as well educated in that area. It just gave me peace of mind having her call me.

Waiting for My Sweetie to Come Home
But today, Madison is at the movies (Big Hero 6) and out for pizza with her friend and her friends family without me, and without having to call me. And YES, I AM WORRYING! Well...I actually am experiencing conflicting emotions right now. There is a part of me that is hoping she doesn't call or text me and she handles every high and low, every blood glucose check, and everything else with managing her disease on her own. This would be such a great accomplishment for her, giving her more freedom! But then there is a part of me that worries, that wants to know she's okay. AND I AM WORRIED.  I guess that's what comes with parenting and parenting a child who is living with this disease.

The movie started at 1:10 pm. It's now 1:35 pm and she hasn't needed to contact me, which is fantastic! But I hate wondering.

I do kind of feel bad. Madison asked if she could have popcorn, which I told her she couldn't. Popcorn is hard to measure and estimate an accurate carb count. As such I told her no. If she measured the popcorn wrong, she could experience hyperglycemia or hypoglycemia. I was trying to prevent her from experiencing either right now. When her blood glucose is high, It comes with so many downsides like headaches, stomach aches, and not being able to focus. Even though she won't be eating popcorn, I did pack her two snack sized candy bars, a lollipop, and a mint. All that she knows the exact carb count for.

And for her lows, she has three juices (to treat her lows) and peanut butter crackers (to stabilize her blood sugar). I also borrowed my son's cell phone so she would able to contact me herself and not have to constantly ask her friends dad, if she did need to reach me.

I can't wait till she comes home to hear how the movie was and how everything went. This is a day I will always remember because it's the day where I felt comfortable enough that she could take care of her type 1 disease on her own without an educated adult nearby. It also is a day where she felt confident enough to do it without her dad or I there.

Monday, January 06, 2014

Five Ways To Make Type 1 Diabetes Fun For Your Child | Working Mother

Every parent who has a child with type 1 diabetes knows this is not a fun disease to live with. You have to prick your fingers eight to twelve times a day. You have to count every carbohydrate that you eat. You have to be careful for blood sugar highs and lows because they can cause hypoglycemia (blurry vision, hunger, irritability, shakiness, fast heartbeat, fatigue, and headache and possibly even passing out) and hyperglycemia (increased thirst, frequent urination, headache, stupor, inability to focus).

As a parent with a nine year old daughter who has had this disease for two years, I've become an expert on managing her blood sugar highs and lows, making sure the tips of her fingers don't turn black because she pricks one more than the other, and teaching her how to take care of herself so she grows up to be a healthy confident adult. But this isn't the only thing that I'm teaching her. I'm also teaching her how to find ways to have fun in between the not so fun moments.

Below are five fun ways to make living with type 1 diabetes fun! The little things such as the below has truly made a difference in my daughter's life. And the smile I get when I do one of them is so worth it!

  1. For dinner, eat dessert first. Then eat the meal.
  2. For breakfast have a piece of birthday cake or a slice of pizza. My daughter has been invited to late night birthday parties and has been unable to eat the cake because of the time of day. So instead, we wrap it up, take it home, and she eats it for breakfast.
  3. When changing her inset, I let her take the pump off for an hour and a half, and without any inset or tape on her behind (that's where we have to attach the inset) she can run around and have some freedom.
  4. Give a lollipop after your child's plays baseball, basketball, or other extracurricular competitive game. After every softball, basketball, and soccer game, I surprise my daughter with a different colored lollipop. This keeps her blood sugar from dropping fast and also puts the sweetest smile on her face. It's her special treat after the game.
  5. Sneak two pieces of hershey kisses into your type 1 child's lunch box. I usually try to sneak two pieces of chocolate because it doesn't affect my daughter's blood sugar as much as other treats. And she loves chocolate! Two Hershey kisses are only 5 carbs.
I would love to hear how other parents make their type 1 diabetic child's life fun! I plan on writing a children's chapter book about an elementary aged girl finds out she has type 1 diabetes. It will be one in my Wunderkind Family series.

Type 1 diabetes (T1D) is an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone that enables people to get energy from food. It occurs when the body’s immune system attacks and destroys the insulin-producing cells in the pancreas, called beta cells. While its causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers are involved. Its onset has nothing to do with diet or lifestyle. There is nothing you can do to prevent T1D, and—at present—nothing you can do to get rid of it.